About.com - Parenting Special Needs
Learn how to locate resources for support and advocacy for children with special needs and their families.
http://specialchildren.about.com/ |
Alliance of Genetic Support Groups
Organization which helps individuals and families with genetic disorders. Includes publications and membership forms.
http://www.geneticalliance.org/ |
American Hyperlexia Association
Facts and information, advice for parents, an international email network, and materials available by order.
http://www.hyperlexia.org/ |
Arc
National organization on mental retardation. Local chapter links and information on projects, services, and education.
http://www.thearc.org/ |
ARCH - National Respite Locator Service
Respite workers give parents of children and adults with disabilities a break from caregiving. Links to public and private providers and agencies are listed by state.
http://www.chtop.com/locator.htm |
AS Support Network
Australian resource page, with an explanation of the disorder's characteristics, common difficulties and links to related sites.
http://home.vicnet.net.au/~asperger/ |
Asperger's Disorder Homepage
Explanations of the disorder, and diagnostic, biological and treatment details. Includes links and a list of clinicians.
http://www.ummed.edu/pub/o/ozbayrak/asperger.html |
Asperger's Syndrome Resources
Links to diagnosis information, classroom management, research, parent support, and projects seeking participants.
http://www.udel.edu/bkirby/asperger/ |
Attention Deficit Disorder
Information and help on ADD, one of the most misunderstood issues facing families today.
http://attn-deficit-disorder.com/ |
Attention Deficit Disorder Support
Informative site which includes tips on behavior modification, book reviews, research updates and facts and myths. With Chat room
http://www.delphi.com/add/index.html |
Autism Depot
Parent of an autistic child lists helpful books, with some details of training and support organizations.
http://home.ptd.net/~rjd/autism/ |
Autism Resources
Directory of autism and Asperger's syndrome resources, collected by John Wobus. Includes news, book lists, and medical and treatment facts.
http://www.vaporia.com/autism/ |
Autism Society of America
7910 Woodmont Ave., Suite 650, Bethesda, Maryland
http://www.autism-society.org/ |
Autism Treatment Center
Teaches parents home-based methods for helping their autistic or differently abled children. Explore the pros and cons of the Son-Rise method.
http://www.son-rise.org/ |
Babies Online - Jonathan Gionfriddo
Mother whose son suffers from epidermolysis bullosa offers a personal account of living with EB.
http://www.babiesonline.com/babies/e/ebbutterflybaby |
BandAids and Blackboards
Designed to help children cope with the stigma and isolation that a chronic medical condition can sometimes bring.
http://funrsc.fairfield.edu/~jfleitas/contents.html |
Canadian Directory
Resource guide for families and professionals seeking information on genetic support groups in Canada.
http://www.lhsc.on.ca/programs/medgenet/support.htm |
Center for the Study of Autism
Oregon-based center provides information to parents and professionals, and conducts research into various treatments.
http://www.autism.org/ |
Cerebral Palsy Tutorial
Multimedia tutorial for parents and children, covering the causes, treatment, and life with cerebral palsy.
http://galen.med.virginia.edu/~smb4v/tutorials/cp/cp.htm |
Children With AIDS Project
Services for children infected and affected by AIDS. Kids can chat online and get support, and adults can read about becoming an adoptive parent.
http://www.aidskids.org/ |
Children with Spina Bifida
Promotes information sharing between parents, with news and research updates, details of problems, and a list of organizations.
http://www.waisman.wisc.edu/~rowley/sb-kids/ |
Clinician's View
Video and print publishing company of education materials for therapists and parents of children with disabilities.
http://www.clinicians-view.com/ |
Comeunity
Resources for adoptive parents and parents of disabled or premature children are the focus of this site.
http://www.comeunity.com/ |
Comeunity - Support for Children With Disabilities
Find resources and parental support for families of children with disabilities and special needs.
http://www.comeunity.com/disability/ |
Creative Collaborations - SpinningStraw.com
Read and contribute stories meant to help families with special-needs children. Includes a newsletter, poetry and related links.
http://www.spinningstraw.com/ |
Directory of Genetic Support Groups
Provides an A-Z listing of groups and organizations that provide support to those affected by genetic disease.
http://members.aol.com/dnacutter/sgroup.htm |
Down Syndrome on the Internet - Down Syndrome
Forum for sharing experiences and information about Down syndrome. Find a family-chat area, bulletin board and online DS magazine.
http://www.downsyndrome.com/ |
Dyslexia - The Gift
Information about the positive side of learning disabilities and remedial teaching methods suited to the dyslexic learning style.
http://www.dyslexia.com/ |
Exceptional Parent Magazine
Contains news and features geared toward parents of children with special needs.
http://www.exceptionalparent.com/ |
Family Village
Virtual community for persons with mental retardation, their families, and providers of services and support.
http://www.familyvillage.wisc.edu/ |
FamilyEducation Network - Special Needs
Guide to learning for parents of children with special needs. Get advice on challenging gifted children and dealing with reading disabilities.
http://www.familyeducation.com/channel/ |
HANDITEL
Central site for international resources includes organizations, mobility devices, aids, publications and prosthetics.
http://www.socialnet.lu/handitel/ |
Hearing Loss in Children
Details of the programs at this Nebraska center, includes information on sign language, hearing aids, and education.
http://www.boystown.org/btnrh/chlc/ |
HiP Magazine
Online publication for hearing-impaired children, with information for parents and teachers. Find general and deafness issues articles.
http://www.hipmag.org/ |
Hydrocephalus Association
Provides publications, conference details, and links for people with hydrocephalus, their families, and health professionals.
http://www.hydroassoc.org/ |
In Search of Ability
Explore this parent's perspective on raising a child with a disability. Contains links to sites on child development, education and parenting.
http://members.aol.com/MBryt1/ability.html |
International Child Amputee Network
Mailing list gives information and support contacts. Includes a host of links to prosthetic technology sites.
http://www.amp-info.net/childamp.htm |
Kids We Care
Camp for kids who have suffered trauma or the loss of parents.
http://www.kidswecare.org/ |
Linnet and Jeremy's Homepage
Family whose little girl suffers from epidermolysis bullosa, a blistering skin disorder, offers pictures and her story.
http://www.geocities.com/jernet2000/jernet.html |
Little City Foundation
Helps children and adults with mental retardation. Includes residential programs, employment services and a mailing list.
http://littlecity.org/ |
Make-A-Wish Foundation
Fulfils the dreams of US children with life-threatening conditions who will probably not survive beyond their 18th year.
http://www.wish.org/ |
Megamark Productions
Videos on childhood learning disabilities such as dyslexia and Attention Deficit Disorder.
http://www.para-net.com/~megamark |
Mothering - When People See Us Together, They Smile
Article profiles parents of disabled children and explores the joys and challenges.
http://www.findarticles.com/cf_dls/m0838/1999_Jan/54308841/p... |
Mothers United for Moral Support
News and activity details of this organization for parents and carers of children with chromosomal abnormalities.
http://www.netnet.net/mums/ |
NACD
National Academy for Child Development provides data and support for learning disorders, including ADD and mental retardation.
http://www.nacd.org/ |
Network on Disabilities
National Parent Network on Disabilities, 1200 G St., NW, Suite 800 Washington, DC
http://www.npnd.org/ |
NICHCY
National Information Center for Children and Youth with Disabilities presents resources on disabilities. Focuses on children.
http://www.nichcy.org/ |
On the Same Page
Autism and Asperger's syndrome resource guide, outlines independent living, employment and medical information.
http://amug.org/~a203/index.html |
Oregon - Alphabet House
Find out about this Oregon based program for kids with special needs. Includes email the nurse, tips from other moms and resources for families/professionals.
http://www.alphabethouse.org/ |
Our-Kids
Site and mailing serving as an int'l support group for parents, caregivers, and others working with children with disabilities or delays.
http://www.our-kids.org/ |
Parents Inc - Alaska
Support organization for parents of children with disabilities located in Alaska. Includes links and lists statewide organizations.
http://www.parentsinc.org/ |
Parents of Two With Autism
Mom shares her story of raising two autistic sons, Adam and Ryan.
http://www.geocities.com/Heartland/Valley/4166/ |
PCI Publishing
Catalog for children and adults with special ed needs. Topics include life skills, transition, inclusion, and communication.
http://www.pcicatalog.com/ |
Pediatric Neurosurgery
Explanation of the symptoms, causes, diagnosis and treatment of hydrocephalus, from the Columbia Medical Center.
http://cpmcnet.columbia.edu/dept/nsg/PNS/Hydrocephalus.html |
Plastic Surgery Information Service - Cleft Lip & Palate Surgery
Overviews the procedures for the corrective surgery of this birth abnormality. View diagrams and FAQs.
http://www.plasticsurgery.org/surgery/cleftlp.htm |
Rare Genetic Diseases in Children
Guide set up by a parent of a child with a rare genetic disorder. Serves as a reference point for others.
http://mcrcr2.med.nyu.edu/murphp01/homenew.htm |
Resources for Special Children
Extensive information about disabilities and learning disorders. Topics include ADD, ADHD, mental retardation and muscular dystrophy.
http://www.irsc.org/ |
Ryan's Asthma, Reflux & Allergy Support and Information
Family of a child with these disorders offers his story and links to resources.
http://www.geocities.com/Heartland/Fields/2287/RyansPage1.ht... |
SFTAH
Society for the Autistically Handicapped provides extensive information including medical facts, diagnosis, treatments, and publications.
http://www.autismuk.com/ |
Sibling Support Project
Dedicated to brothers and sisters of people with special health and developmental needs. Conducts workshops.
http://www.chmc.org/departmt/sibsupp/ |
Suite 101 - Parenting a Child With Down Syndrome
Features articles and a discussion area devoted to topics related to raising children with Down Syndrome.
http://www.suite101.com/welcome.cfm/parenting_down_syndrome |
Touchstone Support Network
Access the newsletters of the Californian network for seriously ill children. Includes links to associated resources.
http://www-med.stanford.edu/touchstone/ |
UCP Net
Cerebral palsy association provides education and research services to people with disabilities, their families, the public and other orgs.
http://www.ucpa.org/ |
VisionQuest
Vision Quest organization provides rehabilitation and counseling for at-risk youth. Find an outline their programs.
http://www.vq.com/ |
WeBehave.com
Retailer provides potty and toilet training aids, behavior-management resources, and motivational and rewards products. Also supplies special needs items for kids.
http://www.webehave.com/ |
Wide Smiles - Cleft Lip and Palate
Formed to ensure that parents of cleft-affected children do not have to feel alone. Chat with parents or read the files.
http://www.widesmiles.org/ |
Yoga for the Special Child
Learn about a yoga program specifically designed for children with special needs. Includes a list of instructors and workshops nationally.
http://www.specialyoga.com/ |
Childcare
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